I woke up Monday morning feeling sicker than usual. My head was pounding, I was dizzy and nauseous. My body felt like it was on fire and laying down hurt. Getting up felt worse. My stomach was killing me. Ah, another flare but why? Did I do too much on Sunday? Did I eat something …
This was a hard movie to watch. The story covers about 5 months of James White’s life while he takes care of his mother, dying from stage IV cancer. It was raw and brutally honest in telling the story of how an illness can take over a person, and become all consuming to the caregiver. …
Being a mom is hard. Even if you had all possible advantages you could potentially have – physically, mentally, and financially – it’s still a tough job. Being responsible for the full time care of another life is just a daunting task. One of my close friends recently became a first time mom. As she …
“So it’s summer break now, what’d you like to do?” My son just graduated from preschool and has three months off. I signed him up for a full month of summer camp in July, and August will be crazy with welcoming the new baby; so I promised him that June will be free time for …
At some point during the early months of my illness, all my feelings turned into anger (so much anger!), and it lives in me still. In the winter of 2011, after the birth of my son, I started to get really sick. My symptoms progressively worsened with each passing day. By spring, I had lost …
It sounds crazy. A second pregnancy? After all the health crisis that I went through? With all the health problems I am still dealing with? Yes, it is crazy, or as one friend commented “I hope you are not pulling a Steel Magnolias!” It’s a real gamble but ever since I became pregnant with my …
Since I was diagnosed with lupus six years ago, there hasn’t been a moment when I am not aware of my how sick I am. Being chronically ill has become a part of who I am. A big part. I wear many hats throughout the day, that of a mom, a wife, a daughter, a …
If an experience is a great teacher, there is no greater teacher than a repeated experience. It allows us to have a point of comparison between different times in our lives, and edits whatever imaginary views we have in our head. Ever since I became sick, I have a hard time adjusting my realities. I …
I do not believe food alone can be my medicine. I have serious life threatening diseases that require life saving drugs like immunosuppressants for my lupus, coreg for my myocarditis and synthroid for my athyroidism. But medicine alone cannot maintain my well being. In order to be the best I can be, despite my illnesses, …
When my lupus flare progressed so rapidly that I was bedbound for months, I bid my time until I was able to join the living. There were so many things I wanted to do “once I got better.” While over the years my conditions improved, my body never fully recovered. I became a spectator in …
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