“Up, mom, up” , , , my two year old son moaned during his sleep. At the time, he did not understand why his mom was always laying down and not playing with him. I did not know that my illness touched him so deeply that he would dream about it. It broke my heart. …
Overlap Diseases Brrrr . . . it’s getting cold outside. Weather seems to have a lot of effect on my symptoms. One thing that I fear when the temperature drops are my cold hands and feet because I suffer from an overlap disease called “raynaud’s”. Most lupus patients suffer from overlapping diseases such as fibromyalgia, …
Le Scaphandre et Le papillon (The Diving Bell and the Butterfly)* About seven years ago, I went to see the “Diving Bell and the Butterfly” with my husband, who was my boyfriend at the time. It was a true biographical film depicting the life of a French-ELLE magazine editor, who suffered a massive stroke at …
The assumption is that since I do not work, and I have a toddler at home, I must be a “SAHM” – a stay at home mom. Yes, I am a mom and I do stay at home. But this belies the real truth of why I am home . . . I’m sick! I …
It wasn’t until I couldn’t hide it anymore that I started to share news of my pregnancy with family and friends. I was about 20-22 weeks in, already into my third trimester. If I could have given birth without telling anyone, that is the way I would have preferred it. It was not that I …
Lupieliving 