A Useful Modality for Treating Muscle Pain My husband asks me from time to time, what is it like, the muscle pain? And every time he asks, I try to use a new metaphor. Plain words never seem descriptive enough to explain what my widespread muscle pain feels like. So I have said stuff like …
Because of my overlapping lupus, fibromyalgia and neuropathy, I suffer from intense, widespread muscle pain . . . all the time. In my best of moments, I experience muscle pain that seem familiar to my pre-lupus self. The foot and leg pain from walking all day in high heels. The knots on my shoulder from …
“How are you?” It’s a harmless question, really, and the first thing people usually ask after saying hello. Aside from the question of when my son will have a little sister or brother (more on that next time), I find this to be the hardest question to answer. After living with lupus for 4 years, …
Overlap Diseases Brrrr . . . it’s getting cold outside. Weather seems to have a lot of effect on my symptoms. One thing that I fear when the temperature drops are my cold hands and feet because I suffer from an overlap disease called “raynaud’s”. Most lupus patients suffer from overlapping diseases such as fibromyalgia, …
Le Scaphandre et Le papillon (The Diving Bell and the Butterfly)* About seven years ago, I went to see the “Diving Bell and the Butterfly” with my husband, who was my boyfriend at the time. It was a true biographical film depicting the life of a French-ELLE magazine editor, who suffered a massive stroke at …
“It’s not like you are going to die . . .”
Lupieliving 