“It changes you.” Oddly enough, the two people who are most involved in my progress are none other than my rheumatologist and my disability case worker. Who knew that in my mid-thirties, my closest relationships would be with these two people. How did this come about? Well, my immediate family, since they live it with …
It’s Christmas eve, eve . . . and the pressure is mounting. So much to do! . . . and yet, so little energy. Holidays are really tough on us lupies. Christmas used to be my favorite time of the year, but after I became sick, it became really hard to enjoy the holidays. I …
“All magic comes with a price.” -Rumpelstiltskin Without medicine, I would most likely be dead. To a lupie like me, lifesaving drugs are like magic. But like magic, taking these drugs comes with a heavy price of suffering its many side effects. There are so many things wrong with me on any given day that …
“How do you want to deliver your baby?” Missing from this inquiry was “How do you (lupus patient) want to deliver your baby (since it is a high risk pregnancy)“? During my pregnancy, I got close to friends who are pregnant and became friends with pregnant women. What I didn’t do was talk with women with …
“How are you?” It’s a harmless question, really, and the first thing people usually ask after saying hello. Aside from the question of when my son will have a little sister or brother (more on that next time), I find this to be the hardest question to answer. After living with lupus for 4 years, …
Lupieliving 