Lupieliving

living with lupus, day by day, moment by moment

Being sick is lonely. And only the sick really knows what it’s like to be sick. Don’t get me wrong. Over the years, I have kept and made friends who have tried to understand and empathize with the struggles I go through everyday. And their support is absolutely invaluable to me. Period.´╗┐ But unless you …

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Somehow we made it to two months of breastfeeding.  At first, it didn’t seem like we would last more than a couple of weeks.  Even after putting my baby on the breast, on demand, for seven days, we found out that she lost more than 10% of her birth weight.  We quickly supplemented and I …

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When I had my first baby five years ago, getting good post-partum care was the last thing on my mind. My son was a preemie, born at 33 weeks and was in the NICU.  So I spent the first 15 days post-birth commuting daily to the NICU, spending all day by the incubator, and pumping …

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As hard as it was, there are a few things I miss about being pregnant, one was which was being visibly disabled.  While my symptoms of being pregnant – nausea, heaviness, fatigue – are not as severe as my usual lupus symptoms, I was given much more consideration when I was in a public space. …

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