I first got sick with lupus on January 23, 2010. It was the first night I stayed up bawling out loud in pain. I have never experienced such an intense and prolonged pain before. But in the near 9 years I have been sick with lupus, I have experienced all kinds of pain and continue …
Each medication I take is tied to a certain emotion and memory. For example, the prednisone I take everyday has a long history. It was one of the first lupus meds I took. It both cured me and threw me into delirium when I took it in high doses. It left visible scars on my …
Today, as per my usual visit to the doctor, I filled out a wellness form. I checked off nearly all the listed the symptoms. And as I was checking them off, I can only think, no wonder I am so freaking miserable! I live feeling All these symptoms, All the time! I am now approaching …
Being sick is lonely. And only the sick really knows what it’s like to be sick. Don’t get me wrong. Over the years, I have kept and made friends who have tried to understand and empathize with the struggles I go through everyday. And their support is absolutely invaluable to me. Period. But unless you …
It happened shortly after my son Harry turned six. After a (not unusual) episode of witnessing my irritability, he whispered “I’m sorry you are so tired mom. I know it’s Lupus.” It absolutely broke my heart to hear him say that. While I am glad that he is able to sympathize, I hate the fact …
It was a dark day for many Hillary supporters today. And some nonchalantly dismissed the potential harm of having Trump as our president-elect with a “how much damage can he possibly do.?” It remains to be seen if he follows through with his promise of racist and misogynistic policies. I hope not. More concretely, I …
Somehow we made it to two months of breastfeeding. At first, it didn’t seem like we would last more than a couple of weeks. Even after putting my baby on the breast, on demand, for seven days, we found out that she lost more than 10% of her birth weight. We quickly supplemented and I …
When I had my first baby five years ago, getting good post-partum care was the last thing on my mind. My son was a preemie, born at 33 weeks and was in the NICU. So I spent the first 15 days post-birth commuting daily to the NICU, spending all day by the incubator, and pumping …
As hard as it was, there are a few things I miss about being pregnant, one was which was being visibly disabled. While my symptoms of being pregnant – nausea, heaviness, fatigue – are not as severe as my usual lupus symptoms, I was given much more consideration when I was in a public space. …
On August 23, I got two things I have been wishing for a very long time — (1) to give birth to a healthy baby girl; and (2) to have an uneventful birth. At midnight, I had my last watermelon bite and readied myself for bed. I was scheduled for an 11am c-section and was …
Lupieliving 