Story 1: Sharing coffee with a fellow chronically ill friend, I said that I look forward to growing old in the city. I can imagine spending the days catching a matinee show at Lincoln Center with my husband, like those old couples I see walking around. To which my friend responded how optimistic I am. …
My son is four years old and while he doesn’t understand that his mom is always sick; he does seem to understand that there are many activities that I cannot do. Fortunately, he also seems to understand that there are certain things I can engage in and joyfully does them with me. If …
“But he said you looked fine.” May is lupus month and I strongly feel that awareness of this disease is needed. Until I was diagnosed, I have never heard of lupus or what an autoimmune disease was. Until I was hospitalized I did not really understand lupus. And it was not until lupus took away …
What is wrong with doctors that they think it is ok to just throw out a diagnoses, without so much as an explanation? When I was first diagnosed with lupus five years ago, my rheumatologist was scant on detail and my primary doctor only added to the confusion by impatiently assuring me “you won’t die!” …
Without a proper diagnosis, it is impossible to get on the right road to recovery. But when you have an autoimmune disease, or multiple overlapping diseases like me, it becomes very tricky. I have, among others, lupus, thyroidism and fibromyalgia. All three diseases say I will experience debilitating fatigue. So can I alleviate the fatigue …
“Breastfeeding is good for the baby.” “There is just no substite for breast milk.” “Colostrum is liquid gold.” And so on goes all the pros of breastfeeding, and oh the poor little baby that doesn’t get beast milk from his mom! I took these statements to heart and was determined to breastfeed my little preemie …
After all, I am now a Lupie and as much as I wish it was not the case, I have to learn to live as one.
Lupieliving 